Although I am currently sitting with one leg up on the coffee table, Robaxacet and a shot Down wit Toradol on board, an icepack on my sciatic nerve One butt cheek propped on a couch cushion, in my new home in the middle of the frozen Arctic It's the most Holy of Holies in our little corner of the disability universe.
Blue and yellow will be everywhere and Sedna help us, we are still with the mismatched and "silly" socks. There will be pride, yes The extra chromosome, the conditionthe disability, the whatever-you-want-to-call it, the thing that is Down syndrome, does not preclude one from their humanity, their right to happiness and the ability to seek that happiness. Be loud and goddamned Down wit. I'm also very aware that I don't get to hold my son every day any more But, that doesn't make me any less involved in his parenting even though I am physically thousands of miles away from him.
Ahhh, my little man and his newly found skills In the time since my last post, he is now walking and running. He is talking more and although he has always been very good at getting his point across using a combination of sign and Wyatt-sign and sounds and body language, he's decided to go with words.
Down wit is cool, because that's how I communicate most of the time too. I say most, as I have to admit that I do use a lot of non-sensical grunting, hand waving and sighing most of the time.
I just tell myself that it's part of being the mother of three kids. Or a psych nurse. I have a lot of pride for him too. I'm proud of all my kids.
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Every time they figure something new out or add a new trick Down wit the repertoire, I'm on about it for days. They amaze me, these little people. It Down wit me that my eldest can rhyme off the first 10 elements of the periodic table. It amazes me that my daughter, who is the spitting image of me only prettiercan climb almost anything and completely destroy a room in under 30 seconds It was no less amazing to find out that Wyatt, the guy who wasn't allowed to hold the phone for the longest time as Down wit would press all the buttons and hang up on Mommy in Nunavut, decided to call both my BFF and my mother and have conversations with them both.
And eff anybody that thought differently. They might have not gotten the full gist of the conversation, but man, Down wit was as pleased as anything at the results. And so am I.
yo dog, we bez rollin...
Way to show us up, dude. There's a lot of other things that I'm aware of too, despite my new postal code Down wit our flighty "InterNOT". The ' new and improved asylum ' debate like that is somehow up for debate. The sheltered workshops issue. That cute is still king, supposed superpowers, angels and pedestal ableismthe r-word, the tragedy rhetoric that is still every-blessed-where, and somehow, in some way, devaluing or marginalizing a group of people is ok, because, y'know, that's your opinion and that fact alone somehow warrants validity.
I may need more pain killers Down wit that lot. I haven't written anything here since November.
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I'm aware of that too. That doesn't mean I've faded off into the sunset or wandered off into a northern blizzard if that analogy is Down wit appropriate and to your liking.
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I just haven't had the spoons or the words to say what I've been mulling over. That time is coming again, Down wit. Once I get off this couch, that is I've resorted to lying on my side and typing now.
There's a whole lot of awareness. But, as I've said numerous times, that alone really doesn't do anything. Getting better and finding my spoons and doing the education through the advocacy Making sure that both my twins are included fully in the classroom this fall, not just one of them All the little considerations and leanings in that I do This Down wit about as aware as this World Down Syndrome Day is going to get for me.
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If I do get off this couch at some point, I may shuffle off into the Down wit and visit some friends. I may wear socks too, but only because it is still here and only in my boots.
I will Skype my family later on and hear of the day's discoveries and accomplishments. The subject of Down syndrome may or may not come up. But if it does, I'll answer questions to the best of my ability as I generally do.
It won't come up with family because Down syndrome is Down wit an is at this point. It's Down wit the elephant in the room. It's no longer the "we have to do Down wit and this because of that " thing.
It's just one facet of my son. It's a tiny part of our busy life. It doesn't make more or get in the way of any of the love that is already there. He's a boy, doing boy things and taking part in the world around him.
Like we all do. That's the part that I wish more people understood. Posted by Psychojenic at It's November and time again for the T21BlogHop. I know things have slowed down around here lately, and that has been a regrettable necessity. It will be more apparent in the coming weeks the whys and hows and WTFs, but for now I will endeavor to keep this blog hop running and catch up on my IntheNews posts.
Inclusion, and the necessity for, the benefits of and the undermining thereof have really been on my mind lately. Not just in my personal life and the upcoming Down wit debut of my twins in the fall; it's everywhere I seem to look or Down wit lately.
In my mind, if it's still a Down wit, if I still have to whip out, on the fly, an article on why inclusion benefits everyoneif I still find myself having to explain that yesthey are going together in September, to the same school and possibly the same class and everything As always, non-themed disability advocacy posts are welcome. This blog hop will be open until midnight, November As we find ourselves in October once again, I must admit, I'm feeling a little more optimistic than last year.
Last year at this time, I and a few more like me were met with a certain Down wit of resistance regarding the gulf between awareness campaigns and the actual creation of a climate of acceptance.
I personally was mocked, received hate mail, was party to some online bullying With that, and my ongoing health concerns, you can imagine why I have remained reletively silent lately. However, hope does spring eternal. In my silence, I have been able to listen Acceptancenot awareness. These words have been a battle cry, and will be again. I will also invite colleagues, friends and bloggers from all over the world of Down wit to participate; there is so much we can learn from each other.
There Down wit so much more that we all have in common. Please join us for the next three days and read some wonderful writing about acceptance, meaningful inclusion, equality and justice. Perhaps together we can make a larger impact. Perhaps we can find another few voices along the way. These are from August Here's a Big, Fat, Fuck You. The T21 Blog Hop - August Down wit Anxiety is Not Disordered. Bullies, Bigots and Buffoons, Oh My.
Why "Awareness" is not enough. The Speed of Lightning. This place is New. Autism Acceptance Benefit Show. Putting the "Health" Back in "Mental Health".
Down Wit That Lyrics: It's...
Wheelchair bound women denied mammograms. Man with Down's syndrome faces being deported from Britain after 17 years - because his parents died. Thanks to all who participated.
The T Blog Hop will Down wit place every month on the 21st, for three days and will continue to feature advocacy posts from across the disability community. And that's the news. Keep Down wit stories and information coming!
Posted by Psychojenic at 6: Disabled Americans fighting for the right to save more money. A layered light purple and yellow background, painted with vertical Listen to and buy Syndicate Gangstas music on CD Baby. Download Down Wit It (Remastered) by Syndicate Gangstas on the independent record store by.
Lyrics to "Down Wit That" song by Jeremih & Chance: It's better when you hug me When it's snowing down Ain't no Down wit burning On this side of town D. A blog about Down syndrome, disability, inclusion and family.